Diabetes, type 1 diabetes that is, well, let’s just say the word conundrum fits just perfect. It might be the only thing perfect about T1D. I won’t take you through the exact etymology of the word, but the dictionary says “a confusing and difficult problem or question”. Throw in diabetes burn out, well that is a double conundrum. If I can use a phrase like that. Let me tell you a short little story.
After a very inglorious 11 years, well almost 11, diabetes has seemed to have inflicted burn out on my older d-daughter. I don’t think I have helped either; I’ll own my failure. Let’s add it to my list. It is rough to see her like this.
Surely, I’d like to wake up and see a post from my buddy Mike at Diabetes Mine that the cure is 5-10 months away because it is being fast-tracked through the FDA. That would fix it. Poof, diabetes burn-out is gone, along with diabetes. We’d just have to figure out how to recycle all the diabetes supplies. Half of it would be unused lancets.
Back to burn out. I don’t know how to fix it, and it won’t happen overnight. Being ask every time she turns around if she bloused for this and that, must be annoying. Feel sick from high BG cannot either.
A lot of people have stepped up with horrid advice. You know, the “all’z ya hafta do” type or the diet guru soothsayers who say, “have you tried low carb or keto?” Yes, lets make them feel more different and isolated and add to the burn out. Shut up and go away.
We’re hoping to get both the girls on the Control IQ. They already have the Tslim and the upgrade to the G6 will happen this week. Perhaps having an algorithm take care of the forgetfulness, will take up the slack. I don’t care if that appears lazy to anyone, because the result is a reprieve for my daughter. That is a win, and I’ll take that. Even if it is considered cheating.
Another positive help might be different insulin. I have new insurance and we have options when it comes to insulins. The one she used the last few years, was partially effective. What I mean by this is she had to use a lot more. If we want to switch, only a prior authorization is needed to switch. I eves dropped on the conversation my wife had with the pharmacy benefit company. They were most helpful. Finally, someone helpful, that combats d-parent burn out too.
I know this post is predicting a few things, but I base that on posts I’ve seen. It appears the next-gen insulin pumps are providing relief. Perhaps older DD will find novelty in this upgrade, see the results and this foster greater interest in taking over a little more of her care. Having success over something can do that. It is basic human psychology. Or so I hope.
I guess a follow-up post is in store to share the success or failure of the upgrade. But I’ll hedge my bets that the Control IQ wins out. I’m not predicting a complete game shutout, but the improvement I do.
“Two times and it has rendered me
Punch drunk and without bail
Think I’d be safer all alone” STP
I am a diabetes dad too